Draved syndrome got its named from the French child neurologist who described the syndrome for the first time in 1978. In 2001 a mutation in the gene SCN1A was discovered as one of the reasons for Dravet syndrome to emerge (this causes at least 80% of the Dravet syndrome cases).
The syndrome include difficult epileptical attacks and is often shown during the first year of life.
Dravet syndrome can also amount sensitivity of temperature, shakiness and a development disorder.
The 23th of June is Dravet Syndrome Awareness Day.
Here we share some interviews, stories and other interesting stuff for families with special experiences.
Rick Guidotti, founder of Positive Exposure, used to be an award-winning fashion photographer with clients like Vogue and Elle. One…
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On June 10th we arranged our first Family Day in Trädgårdsföreningen (Gothenburg, Sweden). Free of charge and a programme filled…
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Johan Wendt, social entrepreneur and dad with a great engagement. About the same time as one of his daughters was…
Read moreCreating an account is quick and easy, and completely free of charge. Your profile page can only be viewed by other members. Become a part of the community in order to connect with other families, or to be there as a support for others!
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