Draved syndrome got its named from the French child neurologist who described the syndrome for the first time in 1978. In 2001 a mutation in the gene SCN1A was discovered as one of the reasons for Dravet syndrome to emerge (this causes at least 80% of the Dravet syndrome cases).
The syndrome include difficult epileptical attacks and is often shown during the first year of life.
Dravet syndrome can also amount sensitivity of temperature, shakiness and a development disorder.
The 23th of June is Dravet Syndrome Awareness Day.
Here we share some interviews, stories and other interesting stuff for families with special experiences.
Next up in our series about leisure activities, Johanna tells us about her son Otto's air rifle shooting. A perfect…
Read more
In Stockholm we find a ski-loving family. During a ski holiday they discovered sitski and biski - to the daughter…
Read more
Growing up with a sibling with a disability is often something that affects a person in many different ways and…
Read moreCreating an account is quick and easy, and completely free of charge. Your profile page can only be viewed by other members. Become a part of the community in order to connect with other families, or to be there as a support for others!
Read more