Draved syndrome got its named from the French child neurologist who described the syndrome for the first time in 1978. In 2001 a mutation in the gene SCN1A was discovered as one of the reasons for Dravet syndrome to emerge (this causes at least 80% of the Dravet syndrome cases).

The syndrome include difficult epileptical attacks and is often shown during the first year of life.

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Dravet syndrome can also amount sensitivity of temperature, shakiness and a development disorder.

The 23th of June is Dravet Syndrome Awareness Day.

Stories

Here we share some interviews, stories and other interesting stuff for families with special experiences.

otto-skytte-2
10 February, 2019

“The best thing with air rifle shooting is that you feel like a hunter!”

Next up in our series about leisure activities, Johanna tells us about her son Otto's air rifle shooting. A perfect…

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anneli_2
8 February, 2019

"The best thing about functional alpine skiing is that we can do it together, the whole family!"

In Stockholm we find a ski-loving family. During a ski holiday they discovered sitski and biski - to the daughter…

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projekt-vuxensyskon
28 December, 2018

Grown up siblings share their stories

Growing up with a sibling with a disability is often something that affects a person in many different ways and…

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