Draved syndrome got its named from the French child neurologist who described the syndrome for the first time in 1978. In 2001 a mutation in the gene SCN1A was discovered as one of the reasons for Dravet syndrome to emerge (this causes at least 80% of the Dravet syndrome cases).

The syndrome include difficult epileptical attacks and is often shown during the first year of life.

Dravet syndrome can also amount sensitivity of temperature, shakiness and a development disorder.

The 23th of June is Dravet Syndrome Awareness Day.

Become a part of a supportive family network!

Creating an account is quick and easy, and completely free of charge. Your profile page can only be viewed by other members. Become a part of the community in order to connect with other families, or to be there as a support for others!

Read more