Draved syndrome got its named from the French child neurologist who described the syndrome for the first time in 1978. In 2001 a mutation in the gene SCN1A was discovered as one of the reasons for Dravet syndrome to emerge (this causes at least 80% of the Dravet syndrome cases).
The syndrome include difficult epileptical attacks and is often shown during the first year of life.
Dravet syndrome can also amount sensitivity of temperature, shakiness and a development disorder.
The 23th of June is Dravet Syndrome Awareness Day.
Here we share some interviews, stories and other interesting stuff for families with special experiences.
Marco Guadarrama, a design strategist and UX researcher at IKEA, has collaborated with Our Normal Association on multiple projects. In…
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The story of two lives, united by a common path.
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Our Normal Association, a non-profit committed to genuine inclusion for children and young people with disabilities, invites your company to…
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