Draved syndrome got its named from the French child neurologist who described the syndrome for the first time in 1978. In 2001 a mutation in the gene SCN1A was discovered as one of the reasons for Dravet syndrome to emerge (this causes at least 80% of the Dravet syndrome cases).
The syndrome include difficult epileptical attacks and is often shown during the first year of life.
Dravet syndrome can also amount sensitivity of temperature, shakiness and a development disorder.
The 23th of June is Dravet Syndrome Awareness Day.
Here we share some interviews, stories and other interesting stuff for families with special experiences.
Families within the Our Normal network have shared their views on how they are being met by the Swedish health…
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In this article, Ida tells us about her son Sigge’s year in preschool class. It was a long process to…
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Next up in our series about leisure activities, Johanna tells us about her son Otto's air rifle shooting. A perfect…
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