Dysmelia is a congenital disorder that affects hands, feet, arms or legs – the so called extremities. The disorders can appear on one or several extremities. About 45% of the dysmelias strike hands/fingers, 22% strike arms and 33% strike the lower extremities.

To what extent a person with Dysmelia needs help and support can vary a lot. For persons that have a damage on a hand close to the wrist, or on a leg over the ankle, a prosthesis is a common aid.

If the damage for example is placed further out on the hand, a surgery sometimes is done. Many people with dysmelia choose not to use any aid at all since they experience that it is possible to live a life with good quality without it.


Here we share some interviews, stories and other interesting stuff for families with special experiences.

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