Spina bifida is a birth defect at the spinal cord. The condition emerges during the first 21-28 days of pregnancy when the nervous system (spinal cord, brain and nerves) is built up by cells that close themselves to the neural tube. There are three main types: spina bifida occulta, meningocele and myelomeningocele. Spina bifida is an umbrella term for all cases of splitted backbone.

In most cases Spina bifida causes motor disabilities; a wheelchair or other aids for walking are very common among people with Spina bifida.

The social and verbal skills are often good and in most cases children with Spina bifida go to regular preschools and schools. Almost all adults with Spina bifida live their lives independently, with or without personal assistance.

Become a part of a supportive family network!

Creating an account is quick and easy, and completely free of charge. Your profile page can only be viewed by other members. Become a part of the community in order to connect with other families, or to be there as a support for others!

Read more