Spina bifida is a birth defect at the spinal cord. The condition emerges during the first 21-28 days of pregnancy when the nervous system (spinal cord, brain and nerves) is built up by cells that close themselves to the neural tube. There are three main types: spina bifida occulta, meningocele and myelomeningocele. Spina bifida is an umbrella term for all cases of splitted backbone.

In most cases Spina bifida causes motor disabilities; a wheelchair or other aids for walking are very common among people with Spina bifida.

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The social and verbal skills are often good and in most cases children with Spina bifida go to regular preschools and schools. Almost all adults with Spina bifida live their lives independently, with or without personal assistance.


Here we share some interviews, stories and other interesting stuff for families with special experiences.

17 July, 2019

“Sigge shows us something new everyday that he has learnt in school.”

In this article, Ida tells us about her son Sigge’s year in preschool class. It was a long process to…

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10 February, 2019

“The best thing with air rifle shooting is that you feel like a hunter!”

Next up in our series about leisure activities, Johanna tells us about her son Otto's air rifle shooting. A perfect…

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8 February, 2019

"The best thing about functional alpine skiing is that we can do it together, the whole family!"

In Stockholm we find a ski-loving family. During a ski holiday they discovered sitski and biski - to the daughter…

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