Spinal muscular atrophy (SMA) is a neuromuscular disorder – a condition that causes motor nerve cells in the spinal cord to break down, which in turn leads to muscle weakness and muscle fatigue (atrophy).

SMA manifests in various degrees of severity, which all have in common progressive muscle wasting and mobility impairment. There are less serious degrees, as the children maintain relatively good mobility, and very serious degrees where symptoms of muscle fatigue are present already in the first months of life.

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The treatment focuses on relieving symptoms and compensating for the complications that occur. Significant parts are to counteract joint stiffness and scoliosis, to combat respiratory complications, and to support independence in different ways. Today, much research about SMA is done worldwide, resulting in the development of new therapies.

Stories

Here we share some interviews, stories and other interesting stuff for families with special experiences.

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29 March, 2019

Grown up siblings share their stories

Growing up with a sibling with a disability is often something that affects a person in many different ways and…

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“The best thing with air rifle shooting is that you feel like a hunter!”

Next up in our series about leisure activities, Johanna tells us about her son Otto's air rifle shooting. A perfect…

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25 September, 2018

He wants to change the face of beauty

Rick Guidotti, founder of Positive Exposure, used to be an award-winning fashion photographer with clients like Vogue and Elle. One…

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