About Community of Change
A network of families who help drive change.
We engage families in a wide range of topics when collaborating with companies and organisations – from public spaces and healthcare to transport, leisure and social services. These are areas that shape the everyday lives of families with children with disabilities.
Our focus is on representation and lived experience. We strive to elevate voices often overlooked in data-driven processes.
If you’re a parent or relative of a child or young person with a disability, you’re welcome to join our Community of Change. Participation is flexible, and you choose the opportunities that suit you. Sign-up is simple via the mail form below.
So, what’s a Community of Change actually about?
Contribute and share your views in ways that suit you.
When you join, you’ll get invites to different activities – all about bringing in real family perspectives. It could be:
- A quick survey
- A chat or panel
- A workshop (online or on-site)
- Trying out a service or product
Each invite is separate. You choose what works for you.
We know life’s busy – so we keep it flexible and easy. Your voice matters, and it should be easy to share.
We only save your email, and only to send new invites.
Community of change
Why is our Community of Change needed?
New ideas and suggestions can make a difference for many.
Research shows persistent shortcomings in societal inclusion for children and youth with disabilities and their families. At the same time, few initiatives actively support families in taking part and influencing change. Our aim is to change that.
One in four is impacted.
While estimates suggest 10–15% of children and youth have a disability or diagnosis, the real-world impact extends far beyond. Siblings and parents are also directly affected by the level of societal inclusion.
This means the proportion of people impacted is significantly higher than the numbers suggest – at least one in four.
FAQ about Community of Change
A network of families sharing experiences and ideas to make everyday life more inclusive.
All parents and relatives of children or young people with disabilities or diagnoses are welcome. In some projects, we ask about the participation of children and youth themselves – but we always communicate through the parent or guardian.
As a parent or close relative, you’ll receive invitations to various activities – such as surveys, interviews, focus groups, workshops or tests – via email. You always decide for yourself whether or not to participate.
We understand that everyday life can be demanding. That’s why our activities are designed to be simple and flexible – enabling participation on your terms.
In some activities, compensation or other forms of reimbursement may be offered. This will always be stated in the invitation.
We only store your email address in order to send invitations. No other personal data is collected. Read more about how we handle personal data in our terms of use.
Explore examples of previous assignments and collaborations under our cases and news and articles.